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The reality of 'Forever Parenting' when your child needs lifetime care

When people imagine becoming parents, they don’t often envision their child being born with a condition that requires lifetime care.

Hear reflections and wisdom from “forever parents” whose children have autism with anxiety and OCD; a disorder that caused 100 seizures a day; and Down Syndrome.


  • Carrie CarielloMother of five children, including 18 year-old Jack, who has Autism, OCD, and anxiety. She’s the author of two books, and writes regularly for the Huffington Post
  • Adriana Piltz: Mother of three, including 24 year-old Nicky, who was born with tuberous sclerosis. He is non-verbal, has violent outbursts, and needs 24/7 care. She is the founder of Nicky’s Gardens of Hope, which raises money to create a more supported living situation for people with disabilities
  • Cathy Carmode Lim, Marcelino Lim, and Marissa Lim: Cathy and Marcelino are parents to four daughters, including Marissa, a 24 year-old woman with Down Syndrome. Cathy writes about her experiences in parenting and more at lifeandlims.com

Jessica Severin de Martinez, Khaleel Rahman, Meg Fitzgerald, Meg Dalton, and Catie Talarski contributed to this show, which originally aired on May 12, 2023.

Audacious with Chion Wolf is available as a podcast on Apple Podcasts, Spotify, Google Podcasts, Stitcher, or wherever you get your podcasts. Subscribe and never miss an episode!

Join the conversation on Facebook,Twitter, and email.

Khaleel Rahman is a producer for 'Audacious with Chion Wolf.'
Jessica Severin de Martinez is a producer for Audacious with Chion Wolf.
Meg Fitzgerald is the senior project manager for Radio and Storytelling Originals. She works with Connecticut Public's senior director and talk show producers to ensure our audio stories are represented digitally. She helps strategize digital audience growth with other departments for our radio programs and podcasts. Meg also helps to manage and co-produce special projects like StoryCorps CT, NautiWeek, Where Art Thou?, and other programs produced by our storytelling unit.
Meg Dalton is the director of audio storytelling and talk shows for Connecticut Public where she oversees the station’s talk shows and podcasts, including the limited series 'In Absentia'.
Catie Talarski is Senior Director of Storytelling and Radio Programming at Connecticut Public.
Chion Wolf is the host of Audacious with Chion Wolf on Connecticut Public, featuring conversations with people who have uncommon or misunderstood experiences, conditions, or professions.