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Virus Linked To Mysterious Disease That Weakens Children's Limbs

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STEVE INSKEEP, HOST:

What is the cause of a mysterious childhood illness? This illness affects younger kids. It leads to limb weakness and paralysis. A new paper in the journal Pediatrics asks why and links this disease to a virus. NPR's Allison Aubrey reports.

ALLISON AUBREY, BYLINE: For kids who are hit with acute flaccid myelitis, or AFM for short, it comes on quickly. It usually starts with run-of-the-mill virus symptoms, such as a runny nose, a cough and fever. But then, in a terrifying turn, kids lose control of their limbs. That's what Susan Coyne, the mom of a boy named Evan, experienced.

SUSAN COYNE: Evan lost arm and legs. He could not move them. He couldn't lift them. He couldn't walk.

AUBREY: He was 7 at the time. He spent a year and a half in intensive rehab, learning how to walk and move his arms again.

COYNE: It was really scary, especially when, you know, this first started, no one knew what it was.

AUBREY: Researchers have now learned more about AFM. Here's Janell Routh of the CDC.

JANELL ROUTH: We know that AFM can be caused by multiple different things. But this paper really focuses in on viral cause.

AUBREY: In particular, a virus known as enterovirus D68. It turns out, during years when there's a lot of EV-D68 circulating in the U.S. - which tends to be every other year - there are also more cases of AFM.

ROUTH: And we're sort of seeing this trend in EV-D68 that mimics the trend in AFM.

AUBREY: Identifying a potential viral trigger is helpful, but enteroviruses, including EV-D68, are pretty common.

ROUTH: They are around all the time, and they cause lots of viral illnesses.

AUBREY: So it's not clear why a few hundred kids out of the many, many more exposed go on to develop AFM. Routh says that's still a mystery. Eventually, there could be a vaccine, but for now, she says, it's important for parents to know the symptoms.

ROUTH: If they notice limb weakness in their child or that facial droop, it's very important they see their physician right away.

AUBREY: Susan Coyne's son Evan has made a full recovery. He's back to playing baseball, living a full life. But there's a wide spectrum. Some kids with AFM are in wheelchairs and remain paralyzed.

Allison Aubrey, NPR News. Transcript provided by NPR, Copyright NPR.

Allison Aubrey is a correspondent for NPR News, where her stories can be heard on Morning Edition and All Things Considered. She's also a contributor to the PBS NewsHour and is one of the hosts of NPR's Life Kit.

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SOMOS CONNECTICUT es una iniciativa de Connecticut Public, la emisora local de NPR y PBS del estado, que busca elevar nuestras historias latinas y expandir programación que alza y informa nuestras comunidades latinas locales. Visita CTPublic.org/latino para más reportajes y recursos. Para noticias, suscríbase a nuestro boletín informativo en ctpublic.org/newsletters.

The independent journalism and non-commercial programming you rely on every day is in danger.

If you’re reading this, you believe in trusted journalism and in learning without paywalls. You value access to educational content kids love and enriching cultural programming.

Now all of that is at risk.

Federal funding for public media is under threat and if it goes, the impact to our communities will be devastating.

Together, we can defend it. It’s time to protect what matters.

Your voice has protected public media before. Now, it’s needed again. Learn how you can protect the news and programming you depend on.