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3-year-old girl with rare genetic disease is allowed to leave Gaza

(SOUNDBITE OF CLOGS' "GUITAR 13")

LEILA FADEL, HOST:

I have a pretty important update for you on a story we told you on this program last month. It was about a 3-year-old girl with a rare genetic disease trapped in Gaza. Her name is Julia Abu Zaiter. And under the stress of bombings, displacement and lack of medical care, Julia had been paralyzed for months. Her father told me if she did not get out of Gaza, she would die. Well, today, with a lot of advocacy by parents outside of Gaza who have children with the same disease, we can tell you that she was evacuated. But Julia's parents were not allowed to go with her, so they made the heartbreaking decision to send their baby away with her 20-year-old aunt. Both are now in Egypt, where Julia will get medical care.

(SOUNDBITE OF CLOGS' "GUITAR 13") Transcript provided by NPR, Copyright NPR.

NPR transcripts are created on a rush deadline by an NPR contractor. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

Leila Fadel is a national correspondent for NPR based in Los Angeles, covering issues of culture, diversity, and race.

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The independent journalism and non-commercial programming you rely on every day is in danger.

If you’re reading this, you believe in trusted journalism and in learning without paywalls. You value access to educational content kids love and enriching cultural programming.

Now all of that is at risk.

Federal funding for public media is under threat and if it goes, the impact to our communities will be devastating.

Together, we can defend it. It’s time to protect what matters.

Your voice has protected public media before. Now, it’s needed again. Learn how you can protect the news and programming you depend on.