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Living Life While Dying of ALS

Jon Imber was at the peak of his career as an accomplished artist and teacher when he was diagnosed with ALS in the fall of 2012. "Imber's Left Hand," a documentary about Jon's life as ALS claimed the use of his dominant right hand, will air on April 5 at the Hartford Jewish Film Festival. 

Jay Fishman was the Chairman and CEO of The Travelers Companies since 2001. He successfully steered the company through the financial crisis of 2007  before ALS forced him to leave his post as CEO in December 2015. His new mission is to spread awareness of this devastating disease.

Jon and Jay are two of the thousands of people diagnosed with Amyotrophic Lateral Sclerosis (ALS) every year, a disease more commonly known as Lou Gehrig's disease.  

It's a debilitating disease with a downward course and no known cure. It comes with little warning and is difficult to diagnose, partly because symptoms of neurologic dysfunction begin mildly, before progressing to almost complete loss of control over voluntary muscles.  

ALS can take a psychological toll on patients and their families. The challenge becomes helping people affected by this disease choose to live their lives to the fullest, while dying. 

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You can join the conversation on Facebook and Twitter. 

Colin McEnroe, Chion Wolf, and Greg Hill contributed to this show. 

Betsy started as an intern at WNPR in 2011 after earning a Master's Degree in American and Museum Studies from Trinity College. She served as the Senior Producer for 'The Colin McEnroe Show' for several years before stepping down in 2021 and returning to her previous career as a registered nurse. She still produces shows with Colin and the team when her schedule allows.

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SOMOS CONNECTICUT is an initiative from Connecticut Public, the state’s local NPR and PBS station, to elevate Latino stories and expand programming that uplifts and informs our Latino communities. Visit CTPublic.org/latino for more stories and resources. For updates, sign up for the SOMOS CONNECTICUT newsletter at ctpublic.org/newsletters.

SOMOS CONNECTICUT es una iniciativa de Connecticut Public, la emisora local de NPR y PBS del estado, que busca elevar nuestras historias latinas y expandir programación que alza y informa nuestras comunidades latinas locales. Visita CTPublic.org/latino para más reportajes y recursos. Para noticias, suscríbase a nuestro boletín informativo en ctpublic.org/newsletters.

Federal funding is gone.

Congress has eliminated all funding for public media.

That means $2.1 million per year that Connecticut Public relied on to deliver you news, information, and entertainment programs you enjoyed is gone.

The future of public media is in your hands.

All donations are appreciated, but we ask in this moment you consider starting a monthly gift as a Sustainer to help replace what’s been lost.